to introduce... myself.
Dino here, writing from the cyber cafe around the corner from my block of rooms. It took me seven minutes to walk here when it would take a healthy person about 25 seconds, but I did so by myself, and that's a huge victory.
My dad is correct in his previous post -- most of the big painful tubes are now gone, and I'm left with one stomach filter type of thing, and an IV drip in my arm. On Tuesday (which seems like yesterday) I was a complete mess, tubes everywhere, but the nose breathing tube and the neck IV came out yesterday, and the chest tube and catheter were removed this morning. It was a mixture of both pain and relief to get those out. I'm much more mobile now, at the very least.
My two loving parents have been coming up each day and have noted the progress from Tuesday morning's horrific Hopalong Cassidy's Cavalcade O' Tubes to today's "Hey, he looks pretty close to normal, albeit 30 pounds lighter!" Although of course this afternoon my mom commented that part of my stomach had still retained a little chub, so maybe it wasn't all Kuato's doing.
I'm marking my progress incrementally and although there has been, and will still be, a lot of pain in the rehab process, each day is better than the last. My folks print out all the blog comments and I continue to get every text, voicemail, comment, email, etc. from my amazing group of support. Your continual positive push is keeping me ahead of schedule on my rehab, I truly believe that. The doctors are constantly reinforcing that I'm young and healthy, and I am definitely ahead of track on when tubes normally should be removed, food re-implemented, etc.
There have been several queries about visiting and as my dad noted, as much as I'd love to see each and every one of you, this weekend is probably going to be pretty light with family only. I expect that next week it will become easier for me to say yes to any requests to come down to Stanford to visit.
Dr. Jacobs came by with the path notes this evening. She said the tumor board has determined that my cancer is very likely a lipo-sarcoma, and the next phase of my treatment will be chemotherapy in a few weeks. Right now the remaining cancer is quite small but it's in several places and if Kuato taught us anything before we nailed his ass to the wall, it's that it can grow reasonably quickly. So, we'll do chemo for a few months, but I expect to crush this bad boy with the chemo treatment and if it comes back later, I'll crush it again. Whatever it takes. Most importantly, the vast bulk of cancer is now out of my body. That gives me an incredible feeling of survival and I will continue to survive.
Dad was right -- I spent much of the day sleeping. I'm finally able to sleep for long periods (although anyone that has ever spent time in a hospital will tell you that you can do pretty much anything in a hospital except sleep) and frankly, I'm exhausted. Probably will sleep more tomorrow and Sunday, but I'll begin with a liquid diet tomorrow and my already-requested Chalupa Protocol by next week (hopefully quicker than that, but it could be later, you never know).
That's enough of my blather. Thanks to all of you for faithfully following along and I (and dad) will continue to post updates when we can. Now get out there and enjoy the weekend sunshine. Summer is here for all of us!
With much love,